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05-27-2008 8:03 PM

Re: Week 2: Effective involvement of relevant actors/sectors

GLOBAL FUND has tried the much it could to think and feel for others who are not their kins and folks, it beats my imagination why some one else from another part of the could think straight about some folks, only for those people to bring down doom on themselves.
 
as an AIDS Activist i do not see any challenge, the only thing there is that some men and women in places of authority are only displaying their foolishness and emptiness, thinking they are smart, in the end whatever games they play with HIV/AIDS at the expense of the uninformed poor men and women, will hit back at them some day.
 
we only need leadership, professionalism, nationhood and respect for human live, only these will see us all through, we the civil society must declare our stand boldly, its either we are doing the work or not.
 

05-27-2008 2:48 PM

Effective involvement of relevant actors/sectors - the role of palliative care

Palliative care has been largely ignored by the Global Fund and other international international organisations. This was clearly seen in a recent consultancy commissioned by DFID. This has also been reflected in the minimal attention paid historically to palliative care at International AIDS conferences. The involvement of people who require palliative care is more difficult than with most sectors - however the vital role of hospice and palliative care as an essential component of the continuum of quality, integrated management of HIV disease is increasingly being recognised and it is important that this essential component is given due attention by the Global Fund. Hospice and palliative care embodies the holistic approach to the care and support of people living with HIV/AIDS (PLWHA) and their families that everybody strives for, embracing the relief of pain and other distressing symptoms, psychological, social, emotional and spiritual support of the PLWHA and their family. In the era of antiretroviral therapy it is important for a number of reasons that hospice and palliative care is widely available from diagnosis through to bereavement. Firstly, pain and symptoms are experienced throughout the disease trajectory. Secondly, antiretroviral therapy is associated with significant side effects that need to be managed to maintain adherence and maximize quality of life. Thirdly, access to antiretrovirals is limited globally and mortality is still higher for the infected even in countries with universal access. Therefore terminal care, the historically defining element of hospice and palliative care, is still necessary. Fourthly, as life expectancy increases, co-morbidities, particularly cerebrovascular disease, end stage liver disease, and malignancies are increasingly apparent. Resource-poor countries, particularly Sub-Saharan Africa and India, are leading in the integration of hospice and palliative care into the continuum of care for people with HIV/AIDS. Affordable and culturally appropriate models have been developed, adapting easily to the home-based care model and to the community response to HIV/AIDS ]. These services are integrating well with antiretroviral rollout programmes to ensure seamless and high quality management. The vast majority of hospice and palliative care providers now work with people with HIV/AIDS, in some developing countries almost exclusively, and its importance has been recognised at government level. It is, for example, in the health sector strategic plan for Uganda and the UK Government’s Department for International Development (DFID) HIV and AIDS treatment and care policy. UNAIDS, however, recognises that it “is one of the most neglected aspects of health care”. It is imperative that the Global Fund does not allow this neglect to continue. The fund's Partnership forum in December provides a crucial opportunity for all those involved in the HIV/AIDS field to learn of the great contribution hospice and palliative care makes to the care of patients and families, and to forge partnerships for the future, which will substantially improve care provision. Analysis up to now as a result of a Help the Hospices OSI funded project demonstrates that the Global Fund has not supported palliative care in a significant way. We would welcome the Fund's support in the future and would be interested to get other views from this forum.

05-27-2008 10:13 AM



  • hussainhdf
  • Top 75 Contributor
  • Pakistan
    Not currently affiliated with the Global Fund
  • Posts 8

Re: Week 2: Effective involvement of relevant actors/sectors

The effective involvement of relevant governmental,non-governmental, public and private sectors in the empowerment of the community is the base for positive social change through mass literacy, enhanced quality of education, universal primary health and grass roots economic development The involvement would no doubt be undertaken but the actors who are indulge in the process should be fully involved with the core of their hearts.The issue of improvement should be taken seriously and we have to look whether work we observe in the papers really exists on the ground or not.

05-27-2008 8:46 AM



  • RKN
  • Top 500 Contributor
  • Nepal
    Sub-recipient (SR)
  • Posts 1

Re: Week 2: Effective involvement of relevant actors/sectors

Very basic, simple and universally accepted interventions such as community mobilization under the principles of Greater Involvement of  People living with HIV/AIDS (GIPA) should be rapidly implemented. Despite of the fact that the GIPA principles were universally agreed on several occasion if we look at numbers of PLHA led organizations around the world it is very little compared to the epidemic that affects over 40 million people directly. At least  in the past such as supporting the formation of grass root support groups of people living with HIV/AIDS. Simple calculation suggest that  400,000  support groups are needed however we would hardly find 4000 across the globe.
 
Hence it is evident that PLHAs involvement will be automatically limited due to the fact that they (90%) are still living underground.
There are few examples that have potential for replication. For instance Global Fund and DFID has been supporting the National Association of PLHAs in Nepal for the formation of PLHA support groups across the counrty. In just 2 years more than 100 groups are running each with a membership of over 300 people living with and or directly affected by AIDS.
 
Support groups help PLHAs to understand issues, learn democratic processes and build leadership capacity.This will result in a good national network or association which represents majority thus advocates for their well being.    

05-26-2008 10:01 PM



  • Lejia
  • Top 500 Contributor
  • Fiji
    Not currently affiliated with the Global Fund
  • Posts 1

Re: Week 2: Effective involvement of relevant actors/sectors

One of the mistakes of the past that continue into today is the "use" of the phrase "bottom up approach" but not its "application."
 
Many developmental programmes have been donour driven. At local country level, development programmes of villages and communities have been driven, planned and proposed by members of the communities that are educated, can write proposals etc but usually either do not live in the villages with the communities or if they live in the villages with the communities, have interests outside the communities.
 
In any development programme proposal funding, funding has to include 'empowerment' and the building of capacity in the village communities themselves so that they understand what is required in the writing of proposals. preparation of budgets etc, etc
 
Why this is necessary is that, many of the development needs have been denied because of the strong donour driven agenda that is supported by the input of people that are not subject or direct beneficiaries of the development programme.
 
When these happens, the supposed "beneficiaries" of the development shifts to elsewhere and there is in fact no development for the needy remains needy and all the funds allocated fro that programme achieves nothing altogether.
 
A very good example in Fiji was the Affirmative Action Programme which was targeting the poor and those that want to start businesses at samll scale level. Unfortunately, the existing market took over the programme and any espiring business person  failed as the established business denied them entry through some cunning use of the programme
 
Development programmes should be focused on the beneficiary and the donour and proposal writer and implementers  should work with the intended beneficiaries all the time monitoring and reveiwing them all the time
 
Laitia

05-26-2008 6:02 PM

Re: Week 2: Effective involvement of relevant actors/sectors

effective involvement of government and NGO, public sector organization and health organization should totaly invove to built our nation free from the sti/std disease.NGO which have interest to do something for nation and it public primarly calculate the public knowledge bout the common and effective disease. firstly aware the people on the camp basis/melas. constitute the people which are already suffering and futurely suffered. the way of work should have constituecy and effective so that people can took benefit without the extra knowledge applying.all the sectors and actors of the country should spend their time for the control and stimulation of the GF . GF is heartly working the multicountry but it is depends upon the various sector how to utilise the fund. GF team wish solve the problems of nation partially as well as totaly as tne need of that area. team of GF having the global knowledge . i specialy thanksfull to the team of GF. so many experience wish to discuss with GF team but some of my negligency that are effective and harshly. it an opportunity to prove ourself which is given by the GF. the doctors of country, social working organization, health organization will effective for the development of this program. NGO is the heart of the work it can carried out the all activity related with public demand. public need fast and effective treatment. they are not in interesting for expending the time and work. they need to prominent and resulted action.

05-26-2008 5:13 PM



  • Saka
  • Top 50 Contributor
  • Nigeria
    Not currently affiliated with the Global Fund
  • Posts 17

Re: Week 2: Effective involvement of relevant actors/sectors

Involvement of other actors/sectors will no doubt improve better performance, there are actors in field not visible but very active and respected in thier teritories. it is important to carry out environmental scan in any region to identify who the actors are and where they are located including the strong focal areas in development work. it may be good to collaborate with credible personalities and or organizations, the actors's voice may not be convetional or look ideal but that is what work for the communites, thier leadership and responsiveness must also be consider.

05-26-2008 1:47 PM



  • Info
  • Top 10 Contributor
  • Switzerland
    Global Fund Secretariat
  • Posts 713

Week 2: Effective involvement of relevant actors/sectors

Click here to read the introduction to this theme

What measures could be taken to address the challenges related to the effective involvement of all relevant actors/sectors in the development of programs at country level?

Your answer could include (but does not have to be limited to): challenges in developing proposals or national strategies/plans; arrangements for the participation of different sectors – governmental and non-governmental, public and private – in defining demand and developing programs; measures to facilitate access of different actors to internal and external funding, particularly access to Global Fund processes in-country.
 

References:

-          Round 8 Guidelines. Annex 3 to these guidelines provides examples on the types of activities/interventions that may be included in proposals relevant to the three diseases. These interventions include, but are not limited to, community systems strengthening initiatives to support increased quality and coverage of services to key affected populations. It also includes information on the 'six WHO building blocks' for health systems strengthening (which may be relevant to program level interventions [in s.4.5.] or HSS cross-cutting interventions [in s.4B.] of the Proposal Form).

-          FAQ Round 8, questions 63 to 66 on HSS.

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