Week 3: Data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
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05-09-2008 5:48 PM
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Asima Chakraborty

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India
Not currently affiliated with the Global Fund
- Posts 23
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Re: Week 3: Data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
Thank you GLOBALFUND to give me a scope to participate in your e-forum network.
The main feature to initiate a design the data and information to campaign to bring public attention of the growing incidence of stigma and discrimination faced by the women, gils with HIV/AIDS, TB and Malaria.
To campaign for the Causes of infection, preventive measures and treatment.
The structures of socio-economic factors that i.e. Gender inequality, human rights violation, discrimination that increase peoples vulnerability to the infection on HIV/AIDS, TB or in the case of Malaria.
To campaign the alarming growth of HIV positive throughout the world and it's required tools of preventive strategy, realization and use.
To design how the measures can be adopted to reduce the growth rate of infection from HIV/AIDS, TB and Malaria.
The initiative of an integrated and balance approach to prevent and treat of the diseases like HIV/AIDS, Malaria and TB through social and community development and public and private partnership dedication in the large scale financing.
It is required a massive expansion of social involvement to fight this social evils not only by a mere 'will' or financing, but by the dedication to fight against these threat of infection of the pandemics.
Aisma Chakraborty
General Secretary
The Organization for Peace Environment and Human Rights [TOPER]
Kolkata, India
Email: toperac@gmail.com
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05-09-2008 2:53 PM
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Alastair Green

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Switzerland
Global Fund Secretariat
- Posts 101
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Re:Week 3: Data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
Dear e-Forum participants,
We have received a number of interesting posts for this week's question in this forum, and I would like to thank all who have participated so far. To further develop the ideas that have emerged from discussions, I would like to share with you the summary of recommendations from the Spanish forum.
- Data that could be useful: socioeconomic information; data on active sexual life; background information on sexual violence, geographical location; data on prevalence and incidence of HIV, malaria and TB. The sound approach should include the components of permanent research, prevention and cure of diseases and strategies of socioeconomic sustainability (read full post by Humberto Isabel Rodas Aguilar, Guatemala).
To contuinue the discussion on this week's question, just hit the "reply" button of this message.
Best regards,
Alastair
E-Forum Facilitator
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05-08-2008 1:14 PM
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oliver Eze

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Nigeria
Not currently affiliated with the Global Fund
- Posts 4
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Re: Week 3: Data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
With regards to the needs of women, girl and sexual minorities in relation to HIV/AIDS, tuberculosis and malaria, the kind of data expected of implementers, which should be thoroughly cross examined by global funds before funds are disbusted is summarised in the points highlighted below.
These points are derived from Africas matrix of living, a system most operated in the precincts of Africa.
(a) Literacy level among women and girls about the dreaded HIV/AIDS, tuberculosis, malaria, also reproductive health. Alongside is the girl child enrolement into schools most in rural areas.
(b) Accessibility of women and girls to free or subsidised health care services
(c) Infant mortality rate
(d) The number and availablity of health service personnels, with consideration to the number of female health care providers available per rural area
(f) Constitutional rights of the female gender within given regions, how much power is given to the female gender and how much can the female gender express. The culture, norms, religious beliefs within a defined region, and how they affect the female gender.
For feasibilty and potential of gender driven programmes, data's to be provided to global fund from implementers to measure success is highlighted as follows;
(a) A concise methodology/approach of enlightening the female gender, clearly elaborated within a given local precinct
(b) Total number of health care personnels and knowledge capacity of health care providers. Also, available and quality of health facilities
(c) Managerial principles to be applied by implementers, in managing health care providers and health facilities.
(d) Highlighted basic limitation/obstacles expected (as in cultural and religious limitations) how implementers are to tackle the said limitations/obstacles in a given rural region
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05-08-2008 7:32 AM
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Angie

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United States
Not currently affiliated with the Global Fund
- Posts 2
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Re: Week 3: Data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
The global fund doesn't know how many people - whether male OR female have AIDS, malaria, etc. The most critical information the Global Fund needs to monitor and evaluate ANY of its programs is good starting point information. The VERY FIRST STEP in solving any problem is, of course, to understand the true scope and
nature of it. If you don't know what you're up against, how can you address it? How can you be sure you’re targeting the right areas or measure the effectiveness of your efforts if you don't have a good baseline to
measure success or failure? How can you ever figure out whether the rate of illness and death is decreasing if you don't know how many are sick or dying right now before the program begins?
"Accurate and timely data on deaths and causes of death are essential. . . But for more than a quarter of the world’s population – largely in Africa, South-East Asia and the Middle East – there are no recent data available. . .The quality of the information suffers as proper systems for death registration operate in only 29 of
115 countries that report such statistics to WHO. These systems represent less than 13 % of the world population. In the remaining countries, mortality statistics suffer from incomplete registration of births and
deaths, and incorrect reporting of the cause of death and age. (World Health Organization, 10/05/07)"
"Without reliable vital registration systems to track even the existence of births or deaths, naturally the data
for the medical circumstances of those births or deaths—or the lives in between—are unreliable" (Attaran A, 2005).
The amount of money it's been estimated to finally get this BASIC data on the world population, by setting up demographic surveillance sites in the poorest countries, is about 40 million dollars a year. (http://medicine.plosjournals.org/perlserv/?request=read-response&doi=10.1371/journal.pmed.0020318&ct=1 )
That is a TINY portion of what the Global Fund has access to. It's also only 0.1 percent of the global foreign aid budget. We should not be relying on computer modeling or guessing, but on real data instead. Let's make this happen yesterday.
Once we have real data on the development of humanity, you know, its life, death and health (and how shocking and shameful it is that in 2008 the world is still in the dark and doesn't have valid data about the very state of humanity), then it would be easy for the Global Fund to monitor and evaluate programs targeted to women or any other group or disease for that matter.
It seems to me that this is the most obvious and necessary step to making progress against the most pressing problems facing humanity. What happens when such vital data is unreliable? I'll give you the AIDS example of which the Global Fund should be very familiar. Statistics concerning AIDS are notoriously unreliable. ("The United Nations’ AIDS-fighting agency plans to issue a report today acknowledging that it overestimated the size of the epidemic . . . Some epidemiologists have criticized for years the way estimates were made, and new surveys of thousands of households in several countries have borne them out. . ." (New York Times, 11/20/07) Such mistakes and reliance on non-empirically based data can have grave results. Here's an example:
"[F]aced with UNAids’ warning in the nineties that their teachers were about to be decimated by AIDS, several African governments responded by training armies of replacements. The result, according to UK researcher Paul Bennell, is millions wasted and a glut of unemployed teacher trainees in countries like Botswana and Swaziland. Meanwhile, the poor continue to die of ordinary diseases that could be cured for a few cents if medicines were available." (See Rian Milan & also P. Bennell, The Impact of the AIDS Epidemic on Schooling in Sub-Saharan Africa at http://www.eldis.org/fulltext/impactofaidsonschooling.pdf)
Here's another from The Washington Post from 1/18/08:
"In the two decades since AIDS began sweeping the globe, it has often been labeled as the biggest threat to international health. But with revised numbers downsizing the pandemic... AIDS experts are now wondering if it might be wise to shift some of the billions of dollars of AIDS money to basic health problems like clean water, family planning or diarrhea... The world invests about $8 billion to $10 billion in AIDS every year, more than 100 times what it spends on water projects in developing countries. Yet more than 2 billion people do not have access to adequate sanitation, and about 1 billion lack clean water."
Knowing this, the Global Fund should be at the forefront of the effort to gather actually reliable data on AIDS and the other diseases it wants to target, but of course to do that, one needs valid health/life/death data on all of humanity. With that in hand, one could sort that data any which way you want - by pulling out data on women only so we can examine the impact of program A on women, or advise us of how many children for program B. I hope others will encourage the Global Fund to be just that, at the forefront of gathering what we shamefully still do not have, the most important information that humanity needs - accurate data on the very state of humanity. With that data, the Global Fund can more specifically tailor its relief to those suffering from AIDs, Malaria, and TB and properly evaluate such relief efforts, the only way something can be properly evaluated, with real, empirical data. This is affordable and CAN happen immediately. Humanity needs nothing less. We all deserve to be counted.
Angie
www.WhatNewsShouldBe.org
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05-07-2008 7:53 PM
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Kathy Selvaggio

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United States
Not currently affiliated with the Global Fund
- Posts 1
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Re: Week 3: Data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
Data disaggregated by both sex and age are essential in order to get a more concrete sense of the differing impacts of interventions on women and men, girls and boys. However, it is important to go beyond sex- and age-disaggregation to identify indicators that improve the lives of women (or men for that matter).
The issue of gender-based violence is very central to the HIV-AIDS epidemic, so it would seem to be important to develop an indicator that captures whether gender based violence is being addressed in the context of HIV infection-- at the very least process indicators measuring the number of HIV/AIDS service providers who are trained in screening for gender-based violence, and/or who make referrals to legal or social services for victims of violence.
Programs seeking to prevent gender-based violence among communities ar high risk of HIV/AIDS might use more elaborate might measure knowledge, attitudes and practices related to gender-based violence (or gender norms in general) among a targeted group, and the change in those measures over the life of project interventions.
In general, however, the global community on HIV/AIDS desperately needs to develop a better set of indicators that capture the changes in vulnerability of women and girls to infection, depending on many factors that fall outside of the health realm -- education, gender norms, legal rights, economic status, etc. .
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05-06-2008 8:02 PM
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Saka

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Nigeria
Not currently affiliated with the Global Fund
- Posts 7
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Re: Week 3: Data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
This is very intresting, a we thinking of a seperate data farme work for women, girls and sexual minorites groups? which ever, it should be base on principle of acessibility and affordability. This groups are unique in there own, they vary in locations, urban rural, economy and geographic acessibilty a major issues. They will be happy to get in there drugs at door steps if possible, or within very short time, what data can capture this. what percentage recieve drugs , ITN free, what percentage diagnoss postive and receive drugs within very short time.
The data most not be complex and user freindly.
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05-06-2008 8:02 AM
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Feno

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India
Not currently affiliated with the Global Fund
- Posts 5
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Monitor, educate, evaluate and relocate
The communicable diseases are spreading just because of the lack of awareness and the illitracy. So as far as i know in India, global fund can fund the activities of the education. A good agency through the segmental studies in various part of the country can detect the diseased people and we have to relocate them. I mean to say, people with the HIV/Aids should be relocate to a place, if they wish so. Because now they are feeling nobody is there for them. if this mentality is there means, those people having the HIV infection will becoe the carriers. Becuse there will be a feeling of adding more people intheir chin. Its not always true. But according to their psychological condition this may happen. So identiy the people who is having the infection. Just relocate them.
Then the other important step should be take to educate the women about the communicable diseases and aware them how these diseases are infecting. According to most of the family, women plays an important role. As far as society concern, now they are having a voice. So make them aware about the epidemic and vulnerability. They can spread the messages to a mass community. Then as far as HIV is concerned, women can control it by using the preventive measures. Earlier, we were educating them, to compell your partner to use a condom or protective measure. But now we have to educate them about the condoms available for them itself. most of the womens are unaare of these things and they are shy enought o get it from the store. This condition should be changes, there should be a free supply of the preventive measure, i mean condom. And it should be followed by the education. lets start the education from the educational institution. Actually we a group of students planned for the campaigning accross all over India, through educational institution and develop a circle with the different organizations in verious part of the country. Still we were not able to implement our project just because of the lack of funding. If somebod is funding we will be able to educate and at least a minimum part we can relocate.
Thank you,
Phenomon Joy
feno@sify.com
+919986988329
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05-05-2008 6:57 PM
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Charlotte Colvin

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United States
Technical Partner
- Posts 1
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Re: Week 3: Data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
This is certainly a tough question. On the one hand, disaggregating key program indicators by gender (while very important) is certainly not enough to show that we are paying attention to gender. On the other hand, it can be very cumbersome to collect a lot of data that would allow us to know how well programs are performing in this area. Perhaps better analysis of the data that do make it into existing systems is a start.
For example, in the area of TB, we could routinely analyze existing indicators to see who is more likely to have a "complete" TB diagnosis - Are women or men more likely to be lost to follow up during diagnosis? If so, when do they fall out? Are women more likely to make it through the diagnostic algorithm, but then fail to start treatment, or are they less likely to get through the algorithm in the first place? Are diagnostic algorithms implemented differently for men than for women? Who gets a timely smear conversion test?
These may be more easily answered with existing data and could point us in the right direction in terms of what questions we should ask ourselves in terms of the different vulnerabilities of men and women.
If anyone knows of NTPs that are already analyzing these data routinely, it would be very interesting to hear about their experiences thus far.
Respectfully submitted,
Charlotte Colvin
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05-05-2008 5:11 PM
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salome.anyoti

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Tanzania, United Republic Of
Technical Partner
- Posts 2
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Re: Gender: data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
First of all prior to these data be developed, GF should have a clear guidance on what tools or methodologies should be used at country levels on gender mainstreaming. This will ease the work of developing the data as each country will be able to adapt these tools or approaches to mainstream gender in the proposal.
Currently Tanzania is still trying to own the WHO gender mainstreaming tool on helath sector which will then inform how the data will be collected and analysed.There are so many varied tools, methodologies and approaches on gender and heath that needs to be contectualized and how to be dne be left at country levels.
Clarity on gender data on HIV and AIDS in Tanzania is still fluid and this needs to e worked out. Thus GF can support the adoption of the gender tool for the proposal and the dissemination processes to be used to get the data. A factor which Tanzania will built into the Round 8 proposal and apply under the HSS uing HIV and AIDS as the disease.
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05-05-2008 11:54 AM
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Info

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Switzerland
Global Fund Secretariat
- Posts 486
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Week 3: Data that should be provided to the Global Fund for monitoring and evaluation purposes [5 May - 12 May]
What kind of data could and should be provided to the Global Fund to substantiate that a program is…
- designed to address the needs of women, girls and sexual minorities in relation to HIV/AIDS, tuberculosis and malaria?
- sound in approach, feasible, and has the potential for sustainability and impact?
Implementers need robust data to measure the success of efforts to reduce the vulnerability of women and girls to HIV/AIDS, tuberculosis and malaria, and their consequent disproportionate suffering when they or those in their care are infected. Monitoring and evaluation frameworks must take this into account and be adapted where necessary to track and measure the gender aspects of programmes.
References:
• The Global Fund Fact sheet: Ensuring a Gender Sensitive Approach; Page 2, section C
• Global Fund: Round 8 Guidelines
Section 4.5.4, Enhancing social and gender equality. Page 30 and 31
Section 4.8.3, Strengthening monitoring and evaluation systems, page 38
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